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When
actress Mary Tyler Moore first thought about volunteering on behalf
of the Juvenile
Diabetes Foundation in 1983, she feared putting a face
on the disease. After all, her face was one of the most recognizable
on television, and it showed no flaws from the Type 1 (juvenile)
diabetes she'd been diagnosed with in the 1960s.
"What
if I, very healthy and active, had said, 'Look at this devastating
disease,'" says Moore. "No one would have bought that." The Emmy
Award-winning actress, who starred in the groundbreaking
Mary Tyler Moore Show from 1970-77, also risked being stigmatized
in the television industry if she spoke out about her incurable
disease.
But Moore decided to help JDF anyway, raising funds for research
as its international chairman. When she started, the foundation
contributed $3 million annually for research. Today, it's $50 million
as Moore films public service announcements and uses her celebrity
to open doors on Capitol Hill for Congressional testimony and advocacy.
From June 20-22 she will shepherd a new generation of advocates
to Washington when she chairs JDF's first Children's Congress. One
hundred kids with diabetes, representing the 50 states, will testify
at a hearing and meet with representatives. " 'Promise to Remember
Me' is the battle cry," Moore says. "I think it's very hard to put
the memory of a child out of your frontal lobe." She wants the public
to understand the disease, and also to teach children to take a
proactive approach in educating themselves and improving their quality
of living.
"She
has done so much to raise public awareness of the seriousness of
diabetes," says John J. McDonough, the chairman of the board of
JDF International. "She's been very up front about it, and she's
been outspoken in several ways."
Moore had major surgery last fall to correct a diabetes-related
eye problem so severe she could barely see.
She tells her story frankly, then describes the range of complications-from
heart disease to kidney failure-facing diabetics. Daily insulin
injections can keep the effects of the disease in check, but the
drug is not a cure. One American dies from diabetes every three
minutes.
Moore's candor complements JDF's aggressive pursuit of research
to improve care and chances for a cure. Grants from the organization
go to a handful of projects that appear most promising, such as
a $20 million award to a cell transplant study at Harvard University.
"We run it like a business," McDonough says of JDF, which to date
has donated $290 million to research.
A common mantra is "From the bench to the bedside," as laboratory
advances better the lives of patients. Moore's own life is a good
example. She and husband Dr. S. Robert Levine live in New York and
volunteer for JDF, and Moore continues her acting career. "I'm a
just-right busy person," she says.
In the process, she continues to put the best face possible on diabetes.
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