Test the boy's
legs. See if he keeps his balance through all the tremors at home—his parents'
breakup when he's one, the nearly two years of bouncing from apartment to
apartment with his mother and then the ricochet to his father's care
thereafter.
Let the son
become the father's arms and legs. Have him do the laundry in the basement,
where it's difficult for his father to maneuver on crutches, and run to the
kitchen for ingredients when Dad fries pork chops and potatoes in an electric
skillet next to his living-room chair. Have him and his sister, Tasha, four
years older, pull off the father's boots, socks and pants at bedtime, then get
the cream, basin and saline water for the venous ulcers on his old man's
leg.
Let him grow
intimate with weakness so the strength he gains won't be hollow. Here's plenty
more opportunity, when the six-year-old boy's father trips over a sidewalk
crack at the state penitentiary where he works as a unit manager overseeing
security, discipline and sanitation for more than 100 prisoners. Now the
problem's not just the polio that Harlan contracted as a nine-month-old, when
the 1952 epidemic swept through the Winnebago reservation and left him with a
deaf left ear, paralysis in his left arm and leg, and a sunken left shoulder.
Now begins the onslaught of post-polio syndrome that often afflicts polio
victims later in life, the wholesale atrophying of muscles that knocks Harlan
off his feet for good and into a gray three-wheel motorized scooter that he
calls Humphrey. A scooter instead of a wheelchair because... well, a wheelchair
would make Harlan feel handicapped.
Put the boy in
charge of Humphrey. Have him charge its batteries at night. Jump from the van
when they arrive at ball fields, pull out the scooter and bring it to his
father's side before laying a finger on his bag of baseball gear.
Have him fetch
the bases, bats and gloves while Dad motors down the street after dinner,
calling to the neighborhood children, "We're playing ball!" and leading
them to the field at Sacred Heart elementary, where he'll umpire and coach. Let
the boy see his father tip over on curbs and hit the ground without
bitterness.
Surround the boy
and his sister with disabled people whom the father befriends. Mr. Patocka, a
quadriplegic. Mr. Eisenbarth, with bones so brittle they've fractured 50 times.
Assign the two children to the booth at the state fair that educates the
handicapped on new technologies that might make their lives a little
easier.
Tell the boy
about the orthopedic hospital in Lincoln where his dad lived for six years,
five months and 11 days of his childhood, fighting for his life at first and
then enduring the misery of 15 residual surgeries. One in which doctors
shattered his good leg in an attempt to keep its growth from outpacing his
ravaged left leg's, and a few more when, playing football at age nine, his left
knee and hip were so pulverized by a tackle that he ended up in a full-body
cast and hospitalized for nearly a year.
Show the boy some
of the five foster homes that Harlan tumbled through when the disease orphaned
him, overwhelming his struggling parents and a reservation with no medical
facilities to treat it. Let the boy know, without a lick of self-pity, what
it's like to keep walking into new places, thinking this one's going to be
home, then having to leave because your replacement mother grows ill, or you're
the one child too many in a foster home lacking the proper square footage, or
someone there dislikes your ornery streak, or you explode and beat up a foster
brother for mistreating a foster sister.
Take the boy to
the worst place: the children's home in Lincoln where that explosion landed
Harlan at age 13. An institution in which the boy with the crutches and gnarled
hand was repeatedly beaten by two bullies and robbed until at last, as he
packed up once more and crossed the athletic field to run away, a football
player stopped him and said, "Where are you going to go? At some point,
you've got to fight back."
Tell the boy what
it took: waiting for months until the day Harlan found one of the bullies in a
vulnerable place—seated in a toilet stall with no door. Cornering him and
pounding out his fury with his one good fist and arm, then waiting for the
bully's cohort to land in the identical trap, and meting out the same. They
left Harlan alone after that.